Cystinosis Research Foundation

Cystinosis is a rare, genetic disease that slowly destroys the kidneys, eyes, thyroid, muscles, liver, pancreas, and brain. The Cystinosis Research Foundation issues both domestic and international grants twice a year to accelerate the research process and to ensure that there is never a gap in funding new cutting-edge ideas. We are focused and determined to improve the quality of life for our patients and to find better treatments, including a cure, for our adults and children living with cystinosis.